The PHG Foundation warmly welcomes the recently published WHO principles for human genome data collection, access, use and sharing. It is a timely and important contribution to global governance, ...

Dear Commissioners Altman and Lara: On behalf of the American Academy of Actuaries1 Health Equity Work Group (HEWG), I appreciate the opportunity to offer comments on the exposure draft of the Revised ...

The considerations for ethical data collection outlines some of the key ethical considerations around data collection. While specifically developed for Results Monitoring Surveys (RMS), principles ...